Friday, April 2, 2010
Shine a Light...
Today is World Autism Awareness Day. Today you will see the Bennett Family wearing blue in support of our little guy Cohen (I should say BIG guy. He hates it when I call him my little guy) and other children and adults affected by this life altering condition.
While Cohen is making HUGE strides, we have our struggles every day. I just don't write about them. During the day Cohen feels so overwhelmed by things that he will sit there and flex. This happens every day. I have to put him on my lap and squeeze him for about 5 minutes every couple of hours so that he gets that input that he needs. If I didn't do that, then he would probably flex all day long. I don't know why he needs/does it, but after our "session" he seems to feel better and will run off and find something to do.
There are still times when Cohen would rather trace the same path over and over again in a room than go and play with the other kids. Also, he will get some thought or idea stuck in his head and repeat the phrase or action over and over until he freaks out because what he wants is not possible. BUT I can say that this is a completely different kid than the one you saw almost 2 years ago. We have words. We have smiles. We have laughter. And we have sparkly blue eyes that really LOOK at us instead of staring through us like they used to. And it's all because of the hard work of therapists, us and Cohen. And I'm so thankful. Cohen being diagnosed autistic was hard. Mitch and I cried. We cried because we had just been through hell with Aja, and we cried because we didn't know what Cohen's future held. But now we laugh. We praise. We get excited for what his future holds. We know that it could have been much, much worse.
Don't diminish...Be aware. That is the best thing you could do for a family going through something like this. You have no idea what happens behind closed doors. Be accepting. Listen. Because life with an autistic child is hard..and it's consuming.
Shine a light...
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1 comment:
You are an amazing mom, and I don't know how you do it all. People always tell me how wonderful I am just for having 6 kids and I think they should see all that you do.
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