Wednesday, August 27, 2008


The doc called me this afternoon and we DO NOT have a seizure disorder!! I am so happy! I really don't think I could have handled a seizure disorder on top of everything else. Just thought you all would appreciate the update.

Here is my happy dance:

Tuesday, August 26, 2008

So, he has autism..

Well, it has been confirmed. We went to the developmental pediatrician today and sat there for 2 hours and answered questions. Oy...My brain is fried.

To add a cherry to the top of the chocolatey sundae that is my life, Cohen goes in tomorrow morning for an EEG (electroencephalogram) to see if he might have a seizure disorder. Apparently, the flexing of all of his muscles when he gets up from sleep is an indicator that something more might be going on. I'm hoping we get the results tomorrow afternoon.

Anyway, we got ourselves a whole bunch of handouts, get the EEG, go see a geneticist (sorry if I spelled that wrong), get into a communication clinic, and FINALLY get into an autism clinic as well..All of which have a waiting list. I hate waiting.

The good news is he is not severe autistic, which makes me a bit happier because that means he can function at SOME level when he gets older, what level that is we won't know until he goes in for his clinical and communicative clinics and we see what is going on in his little brain too.

Here is the little man I love so much with a funny look on his face.

Saturday, August 23, 2008

Our Last Hurrah of the Summer!

This summer has been kind of crappy for the kids with everything that has been going on with Aja and Cohen. So Mitch and I took the kids up to Bear Lake for the day for one last Hurrah! before school started. They had so much fun! Anessa is a blast to take to anywhere with water because she jumps right in! Peyton, he will get in for minutes at a time, but mostly thought it was too cold, so he played in the sand. Cohen is Cohen and sat there in the water not doing anything really but watching the mud drip through his fingers.

Every time a wave would hit Cohen in the face he would sit there and lick the water. It was so gross! I couldn't get him to stop!

Peyton shooting water at Cohen. You can tell how cold he is by how much he's bunching his body!

O fearless one. I swear she has no cold sensation in her unless it's 100 degrees outside, then..she's cold. P.S. Nice look on her face, huh!

Mitch is going to kill me for posting this picture. It's a pic of his HAWT bum, and white body! It's not so white now is it hunny?? He didn't put sunscreen on his back, but made sure to wear a hat on his head, and got FRIED! I swear his skin is about purple..He's been suffering..heehee..

Tuesday, August 19, 2008

Our first ABC Session-P.L.A.Y.

Today, Mitch and I attended Cohen's first P.L.A.Y. session (Play and Language for Autistic Youngsters). It was a big gym filled with a lot of different playground like toys. There were about 5 other kids in there with him, and what it did was give the therapists a chance to get Cohen to engage play with other kids. We didn't watch him because we went into another room with a few other parents and a social worker and talked. It was nice to hear that I'm not alone, and that I'm not crazy. All of the kids there acted just like Cohen and a lot of the parent's had the same frustrations that I do, so it's nice to know that I'm not the only one who gets SUPER frustrated all the time. It was also nice to hear that I'm not the only one who has mourned this whole thing. It's hard. It's been hard to not hear his little voice, it's been hard to see him off by himself not interacting with other kids, it's been hard to think that for the rest of his life he will have difficulty in just about everything he does, that the littlest thing can set him off and trying to figure out what it is is like trying to solve the hardest puzzle ever.

They have a neat library there that is filled with all sorts of books on every type of neurological disorder you could think of. You can bet I'm going to be in there checking out what I can. They even had a book on Hydrocephalus that I'm very interested in reading. It will be nice to have that resource helpful when we find out where Cohen falls in regards to the spectrum, which will be on the 26th.

Wednesday, August 13, 2008

Some Fun with Cohen!!

Since Anessa and Peyton are out of town right now Cohen has been getting spoiled! Here are some fun pics I've taken over the past couple of days.

Cohen is so quiet all the time that it's hard to catch him getting into stuff. Here he is with diaper cream all over his nose. I think he confused it for sunscreen because he kept pointing to outside when I caught him.

Yesterday we took a quick trip up to Bear Lake and got raspberry shakes and took Cohen to the lake. I love this picture. It's so sweet.

Here is Cohen. He basically dived into the lake in all of his clothes.

And just because I think he's a cute sleeper. He's been camping out in our room this week.

He is such a funny amazing little guy! It's been really fun hanging out with just him and Aja this week.

Friday, August 8, 2008

Aja is 2 months old!

Aja turned 2 months old on the 7th and she also graduated from Early Intervention!! Yay! She is doing well enough that they will monitor her and keep tabs on her while they work with Cohen.

I love her little hands in this picture.

Here is a picture of her on her blessing day. She had the prettiest dress!

I think baby feet are the best!

FINALLY!! A smile caught on camera! I worked hard for this one! Don't mind the drool the girl drools constantly!

She will only sleep like this with her dad.

She likes to look at her feet whenever I have her sitting up, so I had to get a picture of it!

Aja got blessed this last Sunday and I wanted to thank everyone who came! Thanks for all your help!

Friday, August 1, 2008

Our Thera-Play Session

So today Cohen had another therapist come in (she works with the social and emotional aspect)and video taped us playing together. Needless to say, it wasn't very successful. He has a few repetitive behaviors that he was more interested in doing than actually PLAYING with the toys. He doesn't play with them "properly". He isn't interested in them. He found 1 toy and just basically sat there with it. She got down on the ground with him as well and tried to engage him, and he would play with her, but only 1 activity. He didn't want to do anything else. Didn't show curiosity and not a whole lot of emotion. Then she had me fill out a form with a whole bunch of Does Your Child Do This type stuff. Does he talk: No. Does he take you to show you what he wants: Sometimes. Basically stuff like that and I had to do a never, some time, half of the time, most of the time, or all of the time. He had a few most of the time which gave me hope, but when it got to the 18-36 month aspect of it I pretty much marked never in all of them because it all delt with talking and playing with others. He has just now started to interact more with Anessa and Peyton. He still won't interact with other kids.

The other night, when we were outside, our neighbors kids were outside as well and do you think Cohen showed any interest in playing with them? Nope. He just went over to their sandbox and played by himself. So this now leads us to the Developmental Physician. She is going to call me today and give me the number so that we can get his final diagnosis. At least, this way, we are getting him the help he needs and we will now know what we can do to help him.